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Events Calendar

Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

If you would like to have your event added to the list, please contact [email protected].

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Event Type

Awareness Day

Patient Conference

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Event Topic

Advocacy/Policy

Awareness

Drug Development

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Conditions

Angelman Syndrome (AS)

CDKL5 Deficiency Disorder (CDD)

Creatine Transporter Deficiency (CTD)

Duchenne Muscular Dystrophy (DMD)

Glycogen Storage Disease Type Ia (GSDIa)

Glycogen Storage Disease Type III (GSDIII)

Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD)

Mucopolysaccharidosis Type VII (MPS VII)

Osteogenesis Imperfecta (OI)

Wilson Disease (WD)

X-linked Hypophosphatemia (XLH)

Latest Past Events

Jul 21 2023

July 21 @ 8:00 am - July 23 @ 5:00 pm

MitoAction & INFORM International Metabolic Conference

Denver, CO

MitoAction & INFORM International Metabolic for Families and Individuals Impacted by Fatty Acid Oxidation Disorders Denver, CO MitoAction & INFORM will host the 4th Annual International Metabolic Conference for Fatty […]

Jun 29 2023

June 29 @ 8:00 am - July 2 @ 5:00 pm

PPMD’S 2023 Annual Conference Dallas, TX

Scottsdale, AZ

The Parent Project Muscular Dystrophy (PPMD) will host the 2023 Annual Conference from June 29 - July 2. The conference brings together families, physicians, researchers, caregivers, industry partners and those […]

Jun 23 2023

June 23 @ 8:00 am - 5:00 pm

XLH Awareness Day

June 23 is X-linked hypophosphatemia (XLH) Awareness Day. Each year, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong.

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