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Participating in virtual or in-person events is a great way to connect with your community, understand the latest research, find resources, and get involved! Check back often for event updates and new happenings!

If you would like to have your event added to the list, please contact [email protected].

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Conditions

Angelman Syndrome (AS)

CDKL5 Deficiency Disorder (CDD)

Creatine Transporter Deficiency (CTD)

Duchenne Muscular Dystrophy (DMD)

Glycogen Storage Disease Type Ia (GSDIa)

Glycogen Storage Disease Type III (GSDIII)

Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD)

Mucopolysaccharidosis Type VII (MPS VII)

Osteogenesis Imperfecta (OI)

Wilson Disease (WD)

X-linked Hypophosphatemia (XLH)

Ongoing

August 13, 2021 @ 8:00 am - August 14, 2021 @ 5:00 pm

ACD Virtual Conference 2021

Save the date! More information to come. Learn more

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Rare Experiences
- Experiences
Rare Journey Resources
Understanding Drug Development
Events Calendar
Ultragenyx Research
- Conditions We Study
Ultragenyx Advocacy
- Our Advocacy Team
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Contact Us
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