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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART;VALUE=DATE:20211208
DTEND;VALUE=DATE:20211209
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UID:10109-1638921600-1639007999@www.ultrarareadvocacy.com
SUMMARY:EveryLife Foundation Community Congress Annual Meeting
DESCRIPTION:The Community Congress is a membership-based program dedicated to bringing patient organizations\, industry leaders\, and other rare disease stakeholders together. The Congress is a strategic advisory council\, providing advice and insight on urgent policy issues and EveryLife Foundation programs and initiatives. It is comprised of four working groups that work on self-selected projects to advance policy for rare disease patients. \nLearn More
URL:https://www.ultrarareadvocacy.com/event/everylife-foundation-community-congress-annual-meeting/
LOCATION:Washington\, D.C.\, DC\, United States
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DTSTART;VALUE=DATE:20211207
DTEND;VALUE=DATE:20211208
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UID:10106-1638835200-1638921599@www.ultrarareadvocacy.com
SUMMARY:10th Anniversary RareVoice Awards
DESCRIPTION:Details coming soon!
URL:https://www.ultrarareadvocacy.com/event/10th-anniversary-rarevoice-awards/
LOCATION:Washington\, D.C.\, DC\, United States
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DTSTART;VALUE=DATE:20211020
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SUMMARY:Rare Disease Scientific Workshop
DESCRIPTION:Details coming soon!
URL:https://www.ultrarareadvocacy.com/event/rare-disease-scientific-workshop/
LOCATION:Washington\, D.C.\, DC\, United States
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