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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART:20210314T070000
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DTSTART;VALUE=DATE:20211002
DTEND;VALUE=DATE:20211003
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SUMMARY:Newborn Screening Bootcamp
DESCRIPTION:The EveryLife Foundation for Rare Diseases and Expecting Health at Genetic Alliance invite you to a virtual five-part training series designed to educate and engage newborn screening stakeholders. \nThroughout the five sessions you will learn how to facilitate a pilot study\, build coalitions\, navigate the recommended uniform screening panel (RUSP) nomination process\, and prepare infrastructure to address challenges. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/newborn-screening-bootcamp/
LOCATION:Sacramento\, CA\, Sacramento\, CA\, United States
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