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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART:20210314T070000
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DTSTART;TZID=America/New_York:20210910T080000
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CREATED:20210805T150543Z
LAST-MODIFIED:20240917T145033Z
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SUMMARY:Association for Glycogen Storage Disease Patient/Family/Medical Conference
DESCRIPTION:The Association for Glycogen Storage Disease holds a family/medical conference each year for those affected with GSD\, their families\, and medical professionals involved in treatment or research of any type of GSD. The focus of these conferences is meeting other people and families affected by GSD\, gaining a better understanding of the GSDs and their implications\, and learning about the latest research findings and upcoming studies.  \nLearn more
URL:https://www.ultrarareadvocacy.com/event/association-for-glycogen-storage-disease-patient-family-medical-conference/
LOCATION:Cleveland\, OH
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