BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Ultragenyx Patient Advocacy - ECPv5.14.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230629T080000
DTEND;TZID=America/New_York:20230702T170000
DTSTAMP:20260504T121444
CREATED:20230222T133808Z
LAST-MODIFIED:20240917T142610Z
UID:11971-1688025600-1688317200@www.ultrarareadvocacy.com
SUMMARY:PPMD’S 2023 Annual Conference Dallas\, TX
DESCRIPTION:The Parent Project Muscular Dystrophy (PPMD) will host the 2023 Annual Conference from June 29 – July 2. The conference brings together families\, physicians\, researchers\, caregivers\, industry partners and those living with Duchenne and Becker to learn the latest progress in the fight to end Duchenne.
URL:https://www.ultrarareadvocacy.com/event/ppmds-2023-annual-conference-dallas-tx/
LOCATION:Scottsdale\, AZ
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2023/02/event_PPMDS2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230721T080000
DTEND;TZID=America/New_York:20230723T170000
DTSTAMP:20260504T121444
CREATED:20230704T175348Z
LAST-MODIFIED:20240917T142604Z
UID:12226-1689926400-1690131600@www.ultrarareadvocacy.com
SUMMARY:MitoAction & INFORM International Metabolic Conference
DESCRIPTION:MitoAction & INFORM International Metabolic for Families and Individuals Impacted by Fatty Acid Oxidation Disorders \nDenver\, CO \nMitoAction & INFORM will host the 4th Annual International Metabolic Conference for Fatty Acid Oxidation Disorders (FAODs) in Denver\, CO\, from July 21–23. It is an event dedicated to advancing knowledge and collaboration in the field of mitochondrial and metabolic disorders.
URL:https://www.ultrarareadvocacy.com/event/mitoaction-inform-international-metabolic-conference/
LOCATION:Denver\, CO
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2023/07/MitoAction-and-INFORM.png
END:VEVENT
END:VCALENDAR