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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART;TZID=America/New_York:20220910T090000
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UID:11142-1662800400-1662814800@www.ultrarareadvocacy.com
SUMMARY:Long Beach Sprint to Save 5K Run and 1 Mile Walk
DESCRIPTION:Join the National MPS Society for the first annual Long Beach Sprint to Save event! This 5K run and 1 mile walk will be held at Shoreline Aquatic Park on September 10. \nLearn more and register
URL:https://www.ultrarareadvocacy.com/event/long-beach-sprint-to-save-5k-run-and-1-mile-walk/
LOCATION:Long Beach\, CA
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DTSTART;VALUE=DATE:20220918
DTEND;VALUE=DATE:20220925
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UID:10521-1663459200-1664063999@www.ultrarareadvocacy.com
SUMMARY:Mitochondrial Disease Awareness Week
DESCRIPTION:During the third week of September\, the Mito community comes together to raise awareness for Mitochondrial Disease Awareness Week. \nThousands of families face the reality of living with mitochondrial disease. During Awareness Week\, MitoAction and Mito families do their part to educate others about mitochondrial disease. \nAwareness is important year-round but highlighting these issues during Mitochondrial Disease Awareness Week provides a time for people to come together and display the passion and strength of those working to improve the lives of those affected by Mito.
URL:https://www.ultrarareadvocacy.com/event/mitochondrial-disease-awareness-week/
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