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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART;VALUE=DATE:20220709
DTEND;VALUE=DATE:20220711
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SUMMARY:2022 OIF National Conference
DESCRIPTION:The 2022 OIF National Conference will be held virtually during the weekend of July 9\, 2022. More details to come!  \nLearn more
URL:https://www.ultrarareadvocacy.com/event/2022-oif-national-conference/
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DTSTART;TZID=America/New_York:20220714T080000
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SUMMARY:The MAGIC Foundation’s 28th Annual Convention
DESCRIPTION:Join the MAGIC Foundation for an educational experience for parents of children living with an endocrine disorder. World renowned speakers from across the globe will present on physical health\, mental health\, insurance\, genetics\, education issues\, and so much more!  \nLearn more
URL:https://www.ultrarareadvocacy.com/event/the-magic-foundations-28th-annual-convention/
LOCATION:Lombard\, IL\, Lombard\, IL\, United States
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DTSTART;TZID=America/New_York:20220722T080000
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SUMMARY:International Metabolic Conference
DESCRIPTION:Join MitoAction and the International Network for Fatty Acid Oxidation Research and Management (INFORM) for the 3rd Annual International Metabolic Conference for Fatty Acid Oxidation Disorders (FAODs) held in Pittsburgh\, PA on July 22\, 23\, & 24\, 2022. \nIn partnership with Dr. Jerry Vockley and INFORM\, MitoAction will assemble leading experts to present to families\, caregivers\, family members and clinicians. The focus of the International Metabolic Conference is for families to learn more about disease management\, current clinical trials\, nutrition and the social needs of caring for a child or an adult with a rare metabolic disorder. This is a great opportunity for families from across the globe to virtually meet one another\, and have the opportunity to interact with professionals who specialize in metabolic disorders. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/international-metabolic-conference/
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