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X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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SUMMARY:Napa MPS Race for a Cure
DESCRIPTION:Join the National MPS Society in Napa\, California for the 6th Annual Napa MPS Race for a Cure on May 1\, 2022. This event will be held at Kennedy Park and will feature a 5K run\, 1 mile walk\, family picnic\, raffle\, and silent auction! \nRegister
URL:https://www.ultrarareadvocacy.com/event/napa-mps-race-for-a-cure/
LOCATION:Napa\, CA
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DTSTART;VALUE=DATE:20220515
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UID:10045-1652572800-1652659199@www.ultrarareadvocacy.com
SUMMARY:International MPS Awareness Day
DESCRIPTION:Every year on May 15\, the mucopolysaccharidosis (MPS) and mucolipidosis (ML) community comes together to recognize those diagnosed\, think about the loved ones who have been lost\, thank doctors and scientists dedicated to finding cures\, and acknowledge parents\, siblings\, and caregivers who work tirelessly to support those with MPS and ML.
URL:https://www.ultrarareadvocacy.com/event/international-mps-awareness-day/
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DTSTART;VALUE=DATE:20220527
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UID:11279-1653609600-1653868799@www.ultrarareadvocacy.com
SUMMARY:CureDuchenne Futures Conference
DESCRIPTION:This conference focuses on bringing education\, resources\, and connection to the Duchenne community in a family-friendly environment. \nLearn more and register
URL:https://www.ultrarareadvocacy.com/event/cureduchenne-futures-conference/
LOCATION:Orlando\, FL
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