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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART:20220313T070000
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DTSTART:20221106T060000
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DTSTART;VALUE=DATE:20220301
DTEND;VALUE=DATE:20220401
DTSTAMP:20260505T071603
CREATED:20210805T144751Z
LAST-MODIFIED:20240917T144941Z
UID:10031-1646092800-1648771199@www.ultrarareadvocacy.com
SUMMARY:Wilson Disease Awareness Month
DESCRIPTION:
URL:https://www.ultrarareadvocacy.com/event/wilson-disease-awareness-month/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220310
DTEND;VALUE=DATE:20220311
DTSTAMP:20260505T071603
CREATED:20220303T185532Z
LAST-MODIFIED:20220303T185532Z
UID:11090-1646870400-1646956799@www.ultrarareadvocacy.com
SUMMARY:MitoAction FAOD Monthly Support Call
DESCRIPTION:Join MitoAction and call host\, FAOD Mom Stephanie Harry\, on the second Thursday of each month for a support call for families affected by fatty acid oxidation disorders (FAOD). This call is a place where you can openly chat about the joys\, challenges\, and questions that arise from living with FAOD.  \nRegister
URL:https://www.ultrarareadvocacy.com/event/mitoaction-faod-monthly-support-call-2/2022-03-10/
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DTSTART;TZID=America/New_York:20220313T080000
DTEND;TZID=America/New_York:20220316T170000
DTSTAMP:20260505T071603
CREATED:20210805T145200Z
LAST-MODIFIED:20240917T144930Z
UID:10042-1647158400-1647450000@www.ultrarareadvocacy.com
SUMMARY:2022 MDA Clinical & Scientific Conference
DESCRIPTION:The 2022 MDA Virtual Clinical & Scientific Conference will take place March 13-16\, in a hybrid environment\, which will include scheduled live-broadcast sessions\, on-demand videos\, networking sessions\, exhibits\, and poster sessions. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/2022-mda-clinical-scientific-conference/
LOCATION:Orlando\, FL
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220323
DTEND;VALUE=DATE:20220324
DTSTAMP:20260505T071603
CREATED:20220308T153923Z
LAST-MODIFIED:20240917T144925Z
UID:11272-1647993600-1648079999@www.ultrarareadvocacy.com
SUMMARY:Advocacy Webinar and Virtual Capitol Hill Registration Kickoff
DESCRIPTION:More details coming soon. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/advocacy-webinar-and-virtual-capitol-hill-registration-kickoff/
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DTSTART;TZID=America/New_York:20220326T080000
DTEND;TZID=America/New_York:20220326T120000
DTSTAMP:20260505T071603
CREATED:20220303T190917Z
LAST-MODIFIED:20240917T144920Z
UID:11107-1648281600-1648296000@www.ultrarareadvocacy.com
SUMMARY:Raleigh Run for Rare
DESCRIPTION:Join the National MPS Society at Dorothea Dix Park on March 26th for the Raleigh Run for Rare! This event will feature a 5K run\, 1 mile walk\, and post-run family picnic at Harvey Hill. \nRegister
URL:https://www.ultrarareadvocacy.com/event/raleigh-run-for-rare/
LOCATION:Raleigh\, NC
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