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X-WR-CALNAME:Ultragenyx Patient Advocacy
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X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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SUMMARY:CCDS Awareness Day
DESCRIPTION:February 1 is Cerebral Creatine Deficiency Syndrome (CCDS) Awareness Day! Find out how you can celebrate this day and help spread awareness of CCDS in your community. \nLearn more.
URL:https://www.ultrarareadvocacy.com/event/ccds-awareness-day/
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UID:10022-1644883200-1644969599@www.ultrarareadvocacy.com
SUMMARY:International Angelman Day
DESCRIPTION:The purpose of International Angelman Day is to raise awareness of the condition\, mobilize people to action\, encourage fundraising\, promote research and educational resources\, and remember those people with Angelman who are no longer with us. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/international-angelman-day/
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DTSTART;VALUE=DATE:20220228
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UID:10028-1646006400-1646092799@www.ultrarareadvocacy.com
SUMMARY:Rare Disease Day
DESCRIPTION:Rare Disease Day takes place on the last day of February every year. The main objective of the day is to raise awareness among decisionmakers and the general public about rare diseases and their impact on the lives of people affected. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/rare-disease-day/
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