BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Ultragenyx Patient Advocacy - ECPv5.14.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210618T080000
DTEND;TZID=America/New_York:20210627T170000
DTSTAMP:20260504T212720
CREATED:20210805T145817Z
LAST-MODIFIED:20240917T145119Z
UID:10062-1624003200-1624813200@www.ultrarareadvocacy.com
SUMMARY:Connected Together: 35th Annual National MPS Society Virtual Family Conference
DESCRIPTION:Mark your calendars to join NMPSS on June 19-20 and 26-27 for their 35th Annual Family Conference! The conference will be held virtually\, with sessions taking place across four days. There will be a kickoff the evening of June 18 with breakout sessions for families and individuals with MPS or ML. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/connected-together-35th-annual-national-mps-society-virtual-family-conference/
ATTACH;FMTTYPE=image/jpeg:https://www.ultrarareadvocacy.com/wp-content/uploads/2021/08/MPS-conf.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210515
DTEND;VALUE=DATE:20210516
DTSTAMP:20260504T212720
CREATED:20210805T145421Z
LAST-MODIFIED:20240917T145125Z
UID:10048-1621036800-1621123199@www.ultrarareadvocacy.com
SUMMARY:National MPS Society Maritime Gala
DESCRIPTION:Join the National MPS Society for an evening of intrigue and philanthropy at the historic Corinthian Yacht Club in Tiburon\, CA\, founded in 1886. This event will feature silent and live auctions\, cocktails\, hors d’oeuvres\, live entertainment\, and an exclusive VIP opportunity. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/national-mps-society-maritime-gala/
LOCATION:Tiburon\, CA\, Tiburon\, CA\, United States
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2021/08/National-MPS-Society-Maritime-Gala.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210222T080000
DTEND;TZID=America/New_York:20210305T170000
DTSTAMP:20260504T212720
CREATED:20210805T144627Z
LAST-MODIFIED:20240917T145130Z
UID:10025-1613980800-1614963600@www.ultrarareadvocacy.com
SUMMARY:Rare Across America
DESCRIPTION:Rare Disease Legislative Advocates (RDLA) staff will organize virtual meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The RDLA team will also help prepare advocates for their meetings\, provide legislative resource materials\, and host pre-meeting training webinars. \nNo prior advocacy experience is necessary. Registration for this event and all RDLA events are free for rare disease advocates. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/rare-across-america/
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2021/08/Rare-Across-America.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20210208T080000
DTEND;TZID=America/New_York:20210212T170000
DTSTAMP:20260504T212720
CREATED:20210805T144346Z
LAST-MODIFIED:20240917T145138Z
UID:10016-1612771200-1613149200@www.ultrarareadvocacy.com
SUMMARY:17th Annual WORLDSymposium
DESCRIPTION:WORLDSymposium will conduct the 2021 annual research conference virtually. WORLDSymposium Virtual 2021 will include many of the core elements of the in-person conference with new innovations that the virtual platform allows. These changes will include new ways to connect with other attendees\, announce new research and trials\, and interact with sponsors. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/17th-annual-worldsymposium/
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2021/08/17_Annual-WORLDSymposium.png
END:VEVENT
END:VCALENDAR