Ultragenyx Patient Advocacy

Newborn Screening Awareness Month
2024-09-01 08:00 - 2024-09-30 17:00 (America/New_York)
In September, organizations across the country raise awareness about the importance of screening newborns for potential illnesses and genetic disorders.
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XLH Day
2024-10-11 - 2024-10-13
Each year, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong.
