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X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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UID:11965-1717228800-1719766800@www.ultrarareadvocacy.com
SUMMARY:Worldwide Awareness Month
DESCRIPTION:The month of June is meaningful to the CDKL5 community. Every year in June\, the CDKL5 community works to educate and raise awareness about the disorder.
URL:https://www.ultrarareadvocacy.com/event/worldwide-cdkl5-awareness-day-2023/
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UID:10084-1725177600-1727715600@www.ultrarareadvocacy.com
SUMMARY:Newborn Screening Awareness Month
DESCRIPTION:In September\, organizations across the country raise awareness about the importance of screening newborns for potential illnesses and genetic disorders. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/newborn-screening-awareness-month/
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DTSTART;VALUE=DATE:20241011
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UID:11968-1728604800-1728863999@www.ultrarareadvocacy.com
SUMMARY:XLH Day
DESCRIPTION:Each year\, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong.
URL:https://www.ultrarareadvocacy.com/event/xlh-awareness-day-2023/
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