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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART:20240310T070000
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DTSTART;TZID=America/New_York:20240601T080000
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UID:11965-1717228800-1719766800@www.ultrarareadvocacy.com
SUMMARY:Worldwide Awareness Month
DESCRIPTION:The month of June is meaningful to the CDKL5 community. Every year in June\, the CDKL5 community works to educate and raise awareness about the disorder.
URL:https://www.ultrarareadvocacy.com/event/worldwide-cdkl5-awareness-day-2023/
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2023/02/event_CDKL5AwarenessDay.png
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