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X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART;TZID=America/New_York:20230201T080000
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UID:11938-1675238400-1677603600@www.ultrarareadvocacy.com
SUMMARY:Rare Liver Disease Month
DESCRIPTION:During the month of February\, the Global Liver Institute will lead the third annual Rare Liver Diseases Month to promote awareness and educate people about the diverse range of liver diseases.
URL:https://www.ultrarareadvocacy.com/event/rare-liver-disease-month/
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UID:11944-1676275200-1676826000@www.ultrarareadvocacy.com
SUMMARY:Duchenne Muscular Dystrophy (DMD) Awareness Week
DESCRIPTION:Duchenne Muscular Dystrophy Awareness Week begins on February 13th through the 19th to call national attention to DMD\, support patients and families suffering from this rare disease\, and raise money for research. DMD is a genetic disorder that cause gradual loss of muscle function and weakness.
URL:https://www.ultrarareadvocacy.com/event/duchenne-muscular-dystrophy-dmd-awareness-week/
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