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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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SUMMARY:Externally led Patient Focused Drug Development (PFDD) Meeting on Cerebral Creatine Deficiency Syndromes (CCDS)
DESCRIPTION:The virtual meeting provides patients and caregivers with an opportunity to share their personal experiences regarding the symptoms and daily impact with CCDS to FDA representatives\, academic and scientific researchers\, medical professionals\, and pharmaceutical companies.
URL:https://www.ultrarareadvocacy.com/event/externally-led-patient-focused-drug-development-pfdd-meeting-on-cerebral-creatine-deficiency-syndromes-ccds/
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