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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART:20220313T070000
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DTSTART;VALUE=DATE:20220918
DTEND;VALUE=DATE:20220925
DTSTAMP:20260505T000520
CREATED:20210915T195815Z
LAST-MODIFIED:20240917T144714Z
UID:10521-1663459200-1664063999@www.ultrarareadvocacy.com
SUMMARY:Mitochondrial Disease Awareness Week
DESCRIPTION:During the third week of September\, the Mito community comes together to raise awareness for Mitochondrial Disease Awareness Week. \nThousands of families face the reality of living with mitochondrial disease. During Awareness Week\, MitoAction and Mito families do their part to educate others about mitochondrial disease. \nAwareness is important year-round but highlighting these issues during Mitochondrial Disease Awareness Week provides a time for people to come together and display the passion and strength of those working to improve the lives of those affected by Mito.
URL:https://www.ultrarareadvocacy.com/event/mitochondrial-disease-awareness-week/
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