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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART;TZID=America/New_York:20220722T080000
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SUMMARY:International Metabolic Conference
DESCRIPTION:Join MitoAction and the International Network for Fatty Acid Oxidation Research and Management (INFORM) for the 3rd Annual International Metabolic Conference for Fatty Acid Oxidation Disorders (FAODs) held in Pittsburgh\, PA on July 22\, 23\, & 24\, 2022. \nIn partnership with Dr. Jerry Vockley and INFORM\, MitoAction will assemble leading experts to present to families\, caregivers\, family members and clinicians. The focus of the International Metabolic Conference is for families to learn more about disease management\, current clinical trials\, nutrition and the social needs of caring for a child or an adult with a rare metabolic disorder. This is a great opportunity for families from across the globe to virtually meet one another\, and have the opportunity to interact with professionals who specialize in metabolic disorders. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/international-metabolic-conference/
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