BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Ultragenyx Patient Advocacy - ECPv5.14.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220619T080000
DTEND;TZID=America/New_York:20220623T170000
DTSTAMP:20260505T030006
CREATED:20210805T150018Z
LAST-MODIFIED:20240917T144815Z
UID:10067-1655625600-1656003600@www.ultrarareadvocacy.com
SUMMARY:DIA 2022 Global Annual Meeting
DESCRIPTION:The DIA 2022 Global Annual Meeting brings together thousands of innovators from around the globe to discuss updates in the ever-changing field of life sciences. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/dia-2022-global-annual-meeting/
ATTACH;FMTTYPE=image/jpeg:https://www.ultrarareadvocacy.com/wp-content/uploads/2021/08/DIA_2022.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220622
DTEND;VALUE=DATE:20220627
DTSTAMP:20260505T030006
CREATED:20220308T150519Z
LAST-MODIFIED:20240917T144809Z
UID:11257-1655856000-1656287999@www.ultrarareadvocacy.com
SUMMARY:PPMD Annual Conference
DESCRIPTION:A comprehensive annual\, international conference focused entirely on Duchenne. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/ppmd-annual-conference/
LOCATION:Scottsdale\, AZ
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2022/03/PPMD-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220623
DTEND;VALUE=DATE:20220624
DTSTAMP:20260505T030006
CREATED:20210805T145733Z
LAST-MODIFIED:20240917T144804Z
UID:10059-1655942400-1656028799@www.ultrarareadvocacy.com
SUMMARY:XLH Awareness Day
DESCRIPTION:June 23 is X-linked hypophosphatemia (XLH) Awareness Day. Each year\, the XLH community works to educate the general public about the condition and celebrate those who are #XLHStrong. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/xlh-awareness-day/
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2021/08/XLH-Awareness-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220623
DTEND;VALUE=DATE:20220624
DTSTAMP:20260505T030006
CREATED:20220308T134750Z
LAST-MODIFIED:20240917T144759Z
UID:11252-1655942400-1656028799@www.ultrarareadvocacy.com
SUMMARY:Virtual Capitol Hill Visits with Senators and Representatives
DESCRIPTION:More details coming soon. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/virtual-capitol-hill-visits-with-senators-and-representatives/
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2022/03/XLH.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220623
DTEND;VALUE=DATE:20220624
DTSTAMP:20260505T030006
CREATED:20220308T135927Z
LAST-MODIFIED:20240917T144753Z
UID:11255-1655942400-1656028799@www.ultrarareadvocacy.com
SUMMARY:Third Annual Cross Country Challenge Kickoff
DESCRIPTION:More details coming soon. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/third-annual-cross-country-challenge-kickoff/
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2022/03/XLH.png
END:VEVENT
END:VCALENDAR