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METHOD:PUBLISH
X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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DTSTART:20220313T070000
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DTSTART:20221106T060000
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DTSTART;VALUE=DATE:20220617
DTEND;VALUE=DATE:20220618
DTSTAMP:20260505T025938
CREATED:20210805T145521Z
LAST-MODIFIED:20240917T144821Z
UID:10052-1655424000-1655510399@www.ultrarareadvocacy.com
SUMMARY:Worldwide CDKL5 Awareness Day
DESCRIPTION:Each June\, the CDKL5 community works to educate and raise awareness about the disorder. June has special meaning to the CDKL5 community\, and June 17 is Worldwide CDKL5 Awareness Day. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/worldwide-cdkl5-awareness-day/
ATTACH;FMTTYPE=image/png:https://www.ultrarareadvocacy.com/wp-content/uploads/2021/08/worldwide_cdkl5.png
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