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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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DTSTART:20220313T070000
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DTSTART;VALUE=DATE:20220301
DTEND;VALUE=DATE:20220401
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UID:10031-1646092800-1648771199@www.ultrarareadvocacy.com
SUMMARY:Wilson Disease Awareness Month
DESCRIPTION:
URL:https://www.ultrarareadvocacy.com/event/wilson-disease-awareness-month/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20220310
DTEND;VALUE=DATE:20220311
DTSTAMP:20260505T080813
CREATED:20220303T185532Z
LAST-MODIFIED:20220303T185532Z
UID:11090-1646870400-1646956799@www.ultrarareadvocacy.com
SUMMARY:MitoAction FAOD Monthly Support Call
DESCRIPTION:Join MitoAction and call host\, FAOD Mom Stephanie Harry\, on the second Thursday of each month for a support call for families affected by fatty acid oxidation disorders (FAOD). This call is a place where you can openly chat about the joys\, challenges\, and questions that arise from living with FAOD.  \nRegister
URL:https://www.ultrarareadvocacy.com/event/mitoaction-faod-monthly-support-call-2/2022-03-10/
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