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X-WR-CALNAME:Ultragenyx Patient Advocacy
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X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART:20210314T070000
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DTSTART;TZID=America/New_York:20210618T080000
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UID:10062-1624003200-1624813200@www.ultrarareadvocacy.com
SUMMARY:Connected Together: 35th Annual National MPS Society Virtual Family Conference
DESCRIPTION:Mark your calendars to join NMPSS on June 19-20 and 26-27 for their 35th Annual Family Conference! The conference will be held virtually\, with sessions taking place across four days. There will be a kickoff the evening of June 18 with breakout sessions for families and individuals with MPS or ML. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/connected-together-35th-annual-national-mps-society-virtual-family-conference/
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DTSTART;VALUE=DATE:20210619
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UID:10055-1624060800-1624147199@www.ultrarareadvocacy.com
SUMMARY:CDKL5 Alliance International Virtual Family Conference
DESCRIPTION:The CDKL5 Alliance’s International Virtual Family Conference will be ‘a la carte\,’ meaning participants will be able to visit their website on June 19 or later and view pre-recorded presentations from the speakers outlined in the agenda. All presentations will be in English with subtitles available in Spanish\, Italian\, French\, German\, Russian and Japanese. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/cdkl5-alliance-international-virtual-family-conference/
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