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X-WR-CALNAME:Ultragenyx Patient Advocacy
X-ORIGINAL-URL:https://www.ultrarareadvocacy.com
X-WR-CALDESC:Events for Ultragenyx Patient Advocacy
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DTSTART:20210314T070000
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DTSTART:20211107T060000
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DTSTART;TZID=America/New_York:20210222T080000
DTEND;TZID=America/New_York:20210305T170000
DTSTAMP:20260505T202204
CREATED:20210805T144627Z
LAST-MODIFIED:20240917T145130Z
UID:10025-1613980800-1614963600@www.ultrarareadvocacy.com
SUMMARY:Rare Across America
DESCRIPTION:Rare Disease Legislative Advocates (RDLA) staff will organize virtual meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The RDLA team will also help prepare advocates for their meetings\, provide legislative resource materials\, and host pre-meeting training webinars. \nNo prior advocacy experience is necessary. Registration for this event and all RDLA events are free for rare disease advocates. \nLearn more
URL:https://www.ultrarareadvocacy.com/event/rare-across-america/
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